News
News
Annual reports
Each calendar year the ECFS Patient Registry publishes a detailed Annual Report with demographic and clinical data from people with CF throughout Europe and neighbouring countries who agree to participate in the Registry.
Annual report list
We also publish Highlights Reports with key information from the Annual Data Reports. These reports are designed for people with CF, their families and healthcare team members so they have immediate access to the most significant information.
2023
pdf
ECFS Patient Registry Annual Report 2023
pdf
Highlights Report 2023
pptx
Slide Deck Graphs Annual Report 2023
We have created a powerpoint presentation with many of the figures and graphs from the full annual data report. We strongly encourage you to include these in your own presentations. If you use any of the material please cite:
ECFSPR Annual Report 2023, Zolin A, Adamoli A, Bakkeheim E, 2025.
2022
pdf
ECFS Patient Registry Annual Report 2022
pdf
Highlights Report 2022
pptx
Slide Deck_Graphs_Annual Report _2022
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2022, Zolin A, Adamoli A, Bakkeheim E, van Rens J et al, 2024
2021
pdf
ECFS Patient Registry Annual Report 2021
pdf
At-a-glance Report 2021
pptx
Slide Deck_Graphs_Annual Report _2021
Graphs from the annual report to use in presentations are available in the slide deck. If used, please cite:
ECFSPR Annual Report 2021, Zolin A, Orenti A, Jung A, van Rens J et al, 2023.
2020
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2020, Orenti A, Zolin A, Jung A, van Rens J et al, 2022.
2019
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2019, Orenti A, Zolin A, Jung A, van Rens J et al, 2021.
2018
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2018, Zolin A, Orenti A, Naehrlich L, Jung A, van Rens J et al, 2020.
2017
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. If used please cite:
ECFSPR Annual Report 2017, Zolin A, Orenti A, Naehrlich L, van Rens J et al, 2019.
2016
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2016, Orenti A, Zolin A, Naehrlich L, van Rens J et al, 2018.
2015
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2015, Zolin A, Naehrlich L, van Rens J et al., 2017
2014
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2014, Zolin A, McKone EF, van Rens J et al., 2016
2013
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2013, Zolin A, McKone EF, van Rens J et al., 2016
2012
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2012, Zolin A, McKone E, Nährlich L, van Rens J et al., 2017
2011
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2011, Zolin A, McKone E, Nährlich L, van Rens J et al., 2017
2010
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2010, Zolin A, McKone EF, van Rens J et al., 2014
2008-2009
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2008-2009, L Viviani, A Zolin, HV Olesen et al, 2012
2007
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFS Patient Registry Report on 2007 data; Hanne Olesen et al, 2010
2006
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
European Cystic Fibrosis Registry Report on 2006 data; Hanne Olesen et al, 2009, ECFS
2004-2005
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
European Cystic Fibrosis Registry Report on 2004/5 data; Hanne Olesen et al, 2009, ECFS
2003
Images from this presentation may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to clipboard. However if used please cite:
European Cystic Fibrosis Registry Report on 2003 data; Eitan Kerem et al, 2006, ECFS