Project to enrich the ECFSPR with longitudinal quantitative structural lung data from chest computed tomography (CT) scans.

The European Cystic Fibrosis Society (ECFS), in cooperation with the ECFS Patient Registry (ECFSPR), is supporting Cystic Fibrosis (CF) patient registries for low- and middle-income countries (LMICs) outside of the WHO European Region.

Project dedicated to newborn screening for cystic fibrosis. When a newborn screening result is positive, but cystic fibrosis is not confirmed by other methods.

Project on monitoring new medicines that must be monitored in pharmacovigilance studies (PMV) in accordance with the rules of the European Medicines Agency (EMA).

We invite applications from researchers, industry representatives and pharmaceutical partners seeking to leverage these valuable data for scientific research purposes.