ECFSPR research and award highlights at the 2026 ECFS Conference

The European Cystic Fibrosis Society Patient Registry will be strongly represented at the 2026 ECFS Conference, with an ECFS Award presentation and several oral, ePoster and poster presentations showcasing the breadth of research supported by ECFSPR data.

During the Opening Plenary, prof. Lutz Naehrlich from Giessen, Germany, will present “The journey of the European Cystic Fibrosis Society Patient Registry” as part of the ECFS Award 2026 session. The presentation will take place in Auditorio I on Wednesday, June 3, from 18:30 to 20:00.

Several research projects using ECFSPR data will also be presented during the Epidemiology/Registry sessions:

Oral presentations and ePosters

WS02.1 — Lung function trajectories in the era of highly effective CFTR modulator therapy: analysis of the ECFS Patient Registry
Oded Breuer, Jerusalem, Israel
Epidemiology/Registry Workshop, Auditorio V
Thursday, June 4, 15:00–16:30

WS02.6 — Short-term FEV1 decline after elexacaftor/tezacaftor/ivacaftor does not preclude long-term improvement: a European registry study
Mordechai Pollak, Petah Tikva, Israel
Epidemiology/Registry Workshop, Auditorio V
Thursday, June 4, 15:00–16:30

EPS8.10 — Target trial emulation to evaluate the long-term effect of insulin in people with Cystic Fibrosis-Related Diabetes using the European Cystic Fibrosis Society Patient Registry
Arianna Adamoli, Milan, Italy
Epidemiology/Registry ePoster Session, Auditorio II
Friday, June 5, 14:00–15:00

Poster presentations

P462 — Incidence, prevalence and patterns of Stenotrophomonas maltophilia infection in people with cystic fibrosis across Europe
Dario Prais, Petah Tiqwa, Israel
All Poster Viewing, Exhibition and Poster Area
Thursday, June 4, 14:00–15:00

P469 — Characterization of proton pump inhibitors use in people with CF: real-world data from the European CF Society Patient Registry
Michal Gur, Haifa, Israel
All Poster Viewing, Exhibition and Poster Area
Thursday, June 4, 14:00–15:00

P474 — Newborn screening and early outcomes in cystic fibrosis: ECFS Patient Registry data
Laura Kirwan, Dublin, Ireland
All Poster Viewing, Exhibition and Poster Area
Thursday, June 4, 14:00–15:00

These contributions highlight the value of harmonised European registry data in advancing cystic fibrosis research, supporting international collaboration, and generating real-world evidence to improve understanding of CF care and outcomes across Europe.

We warmly invite conference participants to attend the sessions and visit the posters