Steering Group Meeting in Lisbon

The ECSPR Steering Group, representing 47 countries, came together in Lisbon during the 49th ECFS Conference to review progress and strengthen our collective commitment to improving outcomes for people with cystic fibrosis (CF).

Bringing together centres and national registries from healthcare systems with different structures, resources, and challenges, the meeting highlighted how our shared efforts transform individual data contributions into a powerful source of evidence. Through collaboration, we are able to generate insights that support clinical care, inform research, and guide policy decisions at both national and European levels.

The diversity of our network is one of its greatest strengths. By working together across countries, we can better understand variations in care, identify opportunities for improvement, and advocate for policies that ultimately benefit people with CF.

Thank you to all colleagues for their continued dedication, collaboration, and commitment to maintaining high-quality registry data that drives meaningful change for the CF community across Europe and beyond.