02 Feb 2026
1 min read
The ECSPR Steering Group, representing 47 countries, gathered in Brussels for our annual winter meeting.
We shared key updates on the status of data collection, ongoing pharmacoepidemiology studies, and how data captured in each centre and national registry is translated into insights that support the cystic fibrosis (CF) community across Europe and beyond.
Thank you to all colleagues for the strong collaboration and continued commitment to high-quality, meaningful registry data.