Partnership
For people with CF
ECFS website
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About us

  • General Information
  • Our team
  • Participants
  • How to join?
  • Links
    Documents
  • ECFSPR committees & groups
  • FAQs

Data collection

  • Process for National Registries
  • Annual reports
  • Data Quality
  • The Software
  • Which patients should be reported

Scientific & other projects

  • Research Projects – Applications
  • ENRICH
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  • The ECFSPR Partnership Project – Beyond Europe

Publications

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News
ECFSPR and the CFF-Registry meeting

ECFSPR and the CFF-Registry meeting

  • Partnership
  • For people with CF
  • ECFS website
Download report

About us

  • General Information
  • Our team
  • Participants
  • How to join?
  • Links
  • Documents
  • ECFSPR committees & groups
  • FAQs
Download report

Data collection

  • Process for National Registries
  • Annual reports
  • Data Quality
  • The Software
  • Which patients should be reported
Download report

Scientific & other projects

  • Research Projects – Applications
  • ENRICH
  • CFSPID
  • Pharmacoepidemiology
  • The ECFSPR Partnership Project – Beyond Europe
Download report

Publications

  • Articles
  • Abstracts
  • News
ECFSPR and the CFF-Registry meeting
News

ECFSPR and the CFF-Registry meeting

Download report

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Hungary: The European Cystic Fibrosis Society Patient Registry
ECFSPR Annual Report (2023)
  • General Information
  • Our team
  • Participants
  • How to join?
  • Links
    Documents
  • ECFSPR committees & groups
  • FAQs
  • Process for National Registries
  • Annual reports
  • Data Quality
  • The Software
  • Which patients should be reported
  • Research Projects – Applications
  • ENRICH
  • CFSPID
  • Pharmacoepidemiology
  • The ECFSPR Partnership Project – Beyond Europe
  • Articles
  • Abstracts
  • News
Partnership
For people with CF
ECFS website
ECFSPR Annual Report (2023)
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