The European Cystic Fibrosis Society Patient Registry contains data of over 56,144 patients from 46 countries, as of 2023, encompassing the European region of the WHO.
The participating countries include:
A – I
Albania
Armenia
Austria
Austria
Belarus
Belgium
Bulgaria
Croatia
Cyprus
Czech Republic
Denmark
Estonia
Finland
France
Iceland
Ireland
Israel
Italy
J – R
Iceland
Ireland
Israel
Italy
Kazakhstan
Latvia
Lithuania
Luxembourg
Moldova
Montenegro
Netherlands
North Macedonia
Norway
Poland
Portugal
Romania
Russia
S – Z
Serbia
Slovakia
Slovenia
Spain
Sweden
Switzerland
Turkey
Ukraine
United Kingdom
Poland
2024
CentreType
National Registry
Kosovo and Kyrgyzstan will be active in the registry from 2025. The yearly data submitted by the participating countries is validated and published in the ECFSPR annual report.